Parents of
Children with Cerebral Palsy
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4)
| April H. | april@kidpower.com ICQ: 16851790 AOL:Kasmom2 |
Kyle (6) [Spastic Hemiplegia] I will be more than glad to correspond with anyone who needs support or is looking for information. |
| Sharon Burman | sharonburman@yahoo.com sharon_burman@ peoplesoft.com |
Sharon has a 13 year old daughter Sarah-Jane with mixed Atheoid Quadriplegia. Sharon is interested in most everything in regards to CP |
| Francie Roberson | froberson@kih.net ICQ: 29648545 |
Austin (3)[Spastic Quadriplegia] is almost 2 years post Rhizotomy. He now sleeps with the TES unit which stimulates muscle growth. He is in preschool where he receives PT, OT, Speech, and 1 visit per week in the Assistive technology lab. |
| Paula L. | pooke20@hotmail.com | Desiree (5) [Spastic Quadriplegia] Desiree also has a seizure disorder, asthma, reflux and precocious puberty. She loves to be outdoors, play in water (especially her bath), watch Barney movies. She is non-verbal but understands what you are talking about or asking her. Paula would like to talk to parents and people with the same type of CP. |
| Dotty M. | demyers@grapevinenet.com ICQ: 19610329 AOL: yackydotty |
Dotty has a son ,Jacob, with Spastic Diplegia |
| Gennifer P |
gpant@uswest.net | Caramia (1½) [Spastic Quadriplegia]- MN, Buffalo |
| Kendra Keith | kkmpk@channel1.com | Megan (2) [Spastic Diplegia]-Maine. Kendra would like to talk to other parents with a child with the same type of CP. |
| Tobie A. | adigwe@netscape.net | Tobie has a child with [Spastic, Atheoid Quadriplegia]. He wishes to communicate with parents of children with the same type of Cerebral Palsy. |
| Mary Kaye S | kcstmtz@aol.com | My daughter [Christina (17) with Mixed Hemiplegia] is in her late teens. She uses a communication board to talk, a wheelchair for mobility and a feeding tube for complete nutrition. I am interested in sharing information with other parents concerning Assistive technology and chatting with older persons with CP or their parents on what the future holds for us. So far life has been great! |
| Kathy D. | teddykat@sympatico.ca | I have had the wonderful pleasure of being a parent of a child with Spastic Quadriplegia CP for 12 years. I wouldn't change a single thing about her. I am concerned about her future and what it holds for her. ie education, employment, dating (she is already talking about it) marriage etc. |
| John C. | jhc@bresnanlink.net | I have eight handicapped children. I would like to communicate with other parents and get any ideas they may have and give anything I may have to help them |
| Dawn T. |
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Dawn has a son Sam (9) with Spastic Quadriplegia. |
| Tracey G. | gehrke525@aol.com | Alex was born at 29 weeks. She had a grade 4 bleed. She currently has a seizure disorder and non-verbal. She relies on us for feeding, getting her dressed, taking her from one place to the next. She cannot sit, roll, or walk. We have a new baby on the way and hope that this will help Alex out, she loves other children. She currently gets OT, PT, Speech and Music therapy each one time per week. She will start pre-school 2 days a week starting Aug. 15 thru Easter Seals. She loves to smile and loves for my husband and I to hold her. This is what we spend most of our time doing. |
| Nicola L. | nicolalaing@lineone.net | My youngest son Regan has spastic diaplegic CP. He has just got an electric wheelchair which has given him a new lease on life. He has an older brother named Callum who has mild CP also. |
| June R. | juner@nwonline.net | Tommy(2)[Spastic Hemiplegia] has brought many blessings into our lives and we are so thankful for the privilege of being his parents. Currently the biggest concerns for me are alternative therapies and hearing the successful and not-so-successful stories that others may have with the therapies they tried. We are currently researching and pursuing chiropractic care, hippo therapy, massage therapy, myofacial release, and TES. We will also be home schooling Tommy and would appreciate any input in that area. |
| Sandi S. |
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We have a 12 yr. old son [Spastic Hemiplegia], uses cruthches and walker to get around. Recently experienced seizure disorder for the first time in his life. Being treated with Valproic Acid, Tegretol and now the doctor is wanting to incorporate Carnitor (Amino Acids). Anyone else going through this or have experience in this matter? |
| Stacy F. | stacey.u.frost@ mvn02.usace.army.mil |
I have twin sons. One son has a combination of left hemiplegia and diplegia and is moderate to severely affected. The other has diplegia and is mildly affected. They are 2.5 years old. |
| Anita M. | gypsy58423@aol.com | Would like someone to chat with and someone for my daughter to chat with who has cp |
| Tahir Turgut | tahirturgut@mail.com |
My son -
Mustafa (9) and I have been trying to do my best since his birth to
overcome this defect by applying some physical therapy and I have even
made some toys for developing his nerves. Without knowing what to do but
just a few advises from doctors , I tried every possible ways.
He can use his left hand just like a normal person but there is some movements like he can not hold his neck by his left hand without the help of right hand. He can not turn his left hand upside down like his right and his left arm is a bit shorter than right . Why I write all these because I want to share my feelings with you which will make me feel that I am not alone. And also I want to know more about it if there is anything I can do from now on. |