Parents of
Children with Cerebral Palsy
(Page: 1, 2, 3, 4)
| Angela W | theark4@aol.com | Hi all. We are the proud parents of
two children. They are both are shining stars. We are thankful, and look
forward to being apart of this special group.
With our child we have tried OT, PT, special ed and are waiting to try HBO, and Nacd program |
| Caren S. | twinstdd@aol.com | My son David (18 months) has a twin brother and it is very hard to watch his brother crawling and walking. The doctors say David will walk and I pray they are right. He is sitting up but cannot get into a sitting position by himself. He is trying to crawl but hasn’t got the hang of it yet. He is very determined to follow his brother. David receives physical therapy 2 times a week |
| Sue DuPart | gaduparts@yahoo.com (MSN: (Email addr) |
Meredith (4) was premature. She was 31wks. and was recussitated in 2 minutes. She had strabismus, poor sucking and eating and is lagging in her weight gain. She is very friendly and loving. Her epilepsy was diagnosed at age 4. I have epilepsy and am well qualified to be her mother. I want to hear from others who struggle with weight gain and eating habits. We have used Speech, occupational therapy and visual therapy. |
| Pamela Hoeltke | hoeltke@ivillage.com AOL: hoeltke1 |
We are very grateful to be the parents of David [2] as we thought that he might not be with us long as an infant. David had a very hard time after birth. We would be grateful for any information that would help us to be better parents for David and maybe we can pass the information along as David gets older. Currently we are doing the routine of PT and OT with speech therapy. (David is considered hypotonic) |
| Jennifer F.. | JimandJen@stic.net | My son has ataxic CP and I would love to network with other parents of children with CP. |
| Hillary B. | kcmom@i.am | I am looking for other parents with kids with mild cp and I want to know about what their symptoms were and when they were diagnosed. My child is receiving OT 2 hours a week and will be starting PT, speech, adaptive soon. |
| Adrian V. | adrian.voican@excelnet.ro | My child Maria has Spastic Quadriplegia. We are ready to do max to improve condition. of our child. We have used oral Baclofen Amino Acids. I wish to communicate with other parents. |
| Julian T. | jugs-t@webtribe.net | Josef [9] has severe Spastic Quadriplegic Cerebral Palsy. He does however have the understanding of a nine year old, and is quite intelligent. He cannot however communicate verbally. We are about to try Botox injections on Josef's legs. |
| Joyce A. | abg3@idt.net | Brian is an 8 year old spastic quad. He is bright and mainstreamed in 2nd grade. Uses a power chair and computer with trackball. |
| Psuleen W. | angel52294@aol.com | Our son is 21 months old we got the diagnoses of Stadic Encepholpathy the Dr, was 90% sure it was CP. |
| Cindy P. | cpaine22368@yahoo.com | Cindy has a 16 month old child w/mild CP. Her child is presently in PT/OT co-treat twice a week and speech once a week. Want to try hippotherapy and therapeutic swimming Any stories/experiences from other parents would be appreciated. Would like to talk to parents in similar situation. |
| Terri M. | tlmatt3126@hotmail.com AOL: tlkm84 |
I'm in the Air Force (San Antonio, Texas) and have found it difficult to find good resources for my son. He's a 7 y/o old with Spastic Quadriplegic (or double hemi). Sometimes he's diagnosed as hemiplegic and sometimes as quadriplegic. Once he was diagnosed as double hemiplegic. There just isn't one that describes him. He's in the 1st grade and is a joy to all of his teachers. Cognitively he's right on target which has made it much easier working with the school system. We have done Rhizotomy Tendon Transfers and we're hoping to get approval for TES soon. |
| Marty N. | mjnusbaum@msn.com | Marty's (Chicago, IL) son Eric (11) is in the 5th grade with mild CP. We would like to hear how other parents cope with the challenges associated with keeping up in school, particularly ways to become more effective with using a computer for schoolwork. We have tried P.T., O.T., Speech Therapy, TES, Gait Analysis, leg casts, and orthotics. |
| Lynn B. | Lynn_Brenneman@ hotmail.com |
I am the mother of three boys. The youngest, Eli, is 3 (Quadriplegia) and has mixed CP. He was born full-term, but complications arose during delivery and he died. He was resuscitated and born a second time 12 minutes later. Currently he cannot talk or move independently. We do daily PT, OT as recommended. I'm interested in finding out more about hyperbaric oxygen therapy. I have become an active lobbyist, both locally and statewide. |
| Leanne B. | l_borrowman@hotmail.com | I'm a single parent of [Samantha (6) Spastic Diplegia]. She is a very bright girl and is ding very well in school. She wants to it all. I'm going to be trying HBO treatments in August. |
| Gary D. | gd@wwa.com | I am a CP parent of a 9 year old with Spastic Diplegic CP. I am also a member of the Board of Directors of a Conductive Education Center called The Center for Independence through Conductive Education. Conductive Education Physical Therapy Occupational Therapy Botox injections Tendon lengthening surgery |
| Jennifer B. | laurenzmom@aol.com | Brett also has craniosynostosis and had skull surgery (cranial vault remodel) at 9 months. He also has many syndromal features, yet dr.'s cannot fit him with a certain syndrome. He is a very happy, funny, determined and smart little boy!!! We have tried Physical and Occupational Therapy 3 times a week, Speech Therapy Son wears bi-lateral AFO's. Would like to try cranial sacral therapy. |
| Lillian S. | Skimmer82@webtv.net agridulce@picosito.com |
Kyle (8) is a happy
well-adjusted child. He is very comfortable with his "God-given
challenge." When people say, "What wrong with you?" Kyle
will say, "Nothing is wrong with me, what's wrong with you?" He
enjoys horseback riding, basketball, running (as best as he can), working
on the car with dad, swimming, and riding his big 3-wheel bike.
Kyle has tried (& still does) horseback riding, physical therapy, occupational therapy, speech, and had surgery. We are interested in trying Neuromuscular/Biofeedback Program. |
| Carmen L. | bulita29@hotmail.com | I went through the process of a lawsuit for malpractice. My daughter [age 4, Mixed CP] disabling condition was caused by that. If anyone wants to know about the procedures or need help or support, feel free to ask. Also, my husband is a military. We are currently on PT, OT, ST, aquatic therapy, NDT. Wants to try horseback riding and neurofeedback and home schooling. |
| Becky H | jbcchaag@aol.com | I have twins born at 24 weeks gestation. We are sure our daughter Claudia has CP, although she has not yet been diagnosed. We expect a diagnosis in October. She has high tone in her lower extremities, mainly right leg. Her twin brother Caleb is doing well. |