Parents of
Children with Cerebral Palsy
(Page: 1, 2, 3, 4)
| Atini H. | atini@mail.com | My son Irfan was born normal in 1996. He was a normal boy until 2 years of age. In 1998, he was infected by CMV and got bad seizures for several hours. When the seizures were over, he lost all his abilities as a normal child. He has been attending physical therapy and occupational therapy since then. He is now able to sit on his own, but still unable to stand nor talk. He also has problems swallowing, sucking, and chewing his food, and also emory and perception. According to his doctor and therapist, his overall neurological age is like a 9 month old baby. |
| Jean M | jeandagostino394@cs.com | Michael has mild cp [Hemiplegia][21 months]. His speech is delayed. the words he says are basically just the first constant sound - eg. bu can mean book, ball, bear, etc. I'm Michaels grandmother and he and his mother live with me. I'm looking for info especially relating to speech delay |
| Tammy W. | rotagTammy@aol.com | My 5 year old daughter was born at 28 weeks and has mild CP. Basically, she is a toe walker and has some poor hand coordination. I would like to hear from other parents who have gotten the botox injections done. We will soon be trying the Botox injections. |
| Julie R. | jumes@webtv.net | My son James has severe Spastic Quadriplegia and also a seizure disorder (status seizures) They last up to 1-3 hrs and goes into respiratory distress. This is the most distressing part of his disabilities. He also is tube fed and is non-verbal and mostly non-ambulatory. He has a baclofen pump to decrease his tone and it works wonders. James knows exactly what is going on and has his way of telling me so. His smile and laugh are truly a joy. He is the light of my life. He is my special angel. He has taught me so many things like patience, toleration and unconditional love. Don't know what I'd do without him. Baclofen Pump Occupational Therapy Physical Therapy Speech Therapy |
| Lin K | jimmyk1@bellsouth.net | My son is the sweetest little boy. He has CP and some other health problems. I hope we can connect with some other parents out there!:0) Thanks. Lin |
| Ann R. | jrichar2@jamadots.com AOL: jarjr96 |
My son is four years old has spastic Diplegia. He is one year three months post sdr!! Doing great after surgery. He has had sdr surgery in October of 1999. Done great from it!! Used a walker before surgery. He is now walking on his own.. |
| Ramon M. | inom969@hotmail.com ICQ: 45464698 |
Sam's(7) (Spastic Quadriplegia) problems occurred at birth and were immediately evident. He suffered prenatal asphyxia, was resuscitated twice. He was assisted respiration for 5 weeks. In addition he was diagnosed as blind, deaf, mute and also not mobile. Since then he has regained his sight with daily exercises, and his hearing is perfect. Sam is still non vernal and not mobile although he fully understands what is said to him. He will be starting school in October in Malta, Europe. I am interested in therapy but would like information on hyperbaric and amino acid therapy. Thank you and god bless. |
| Heather K. | kozakhfk@bigpond.com | Max (15 months) (Spastic Diplegia) was born at 30 weeks and was diagnosed with CP at 5 months old. We live in an extremely isolated rural area (Australia) so most of Max's treatments are home-based. I am interested in alternative therapies as well as the standard medical approach. We are wanting to try alternative/natural therapies. |
| Arlon Kruger | akruger@uol.com.br | I'm the father of a seven month baby (Paula (7)).She has shown a developmental delay but her neurologist hasn't decided on a diagnosis yet. He says she might have hydrocephalus or cp. I'd like to communicate with parents of children who have or had a similar story. |
| Christa C. | christaleeh@hotmail.com | I am an info junkie so if anyone has any to share please do, or if you have any questions about my experiences feel free to ask!! My sons CP is due to being born at 28 weeks. Chance (7)(Spastic Diplegia) has tried Botox, serial casting, heel cord and hamstring lengthening, Bacolfen pump. In the next two years; .muscle transfer (quad to hamstring) and osteotomy. |
| Marie Kennedy | MarieKennedy@aol.com | When our son Jimmy was diagnosed with CP at 16mo .old, we were devastated. More from fear of the unknown. We have learned about Cp and ourselves. The diagnosis affected our whole family, as we are very close. I am a stay at home Mom and love it. I have been able to enjoy Jimmy's every accomplishment. We continue to use physical therapy. May be trying botox in the next year. Being a Mother and having this experience made me feel compelled to write about it. |
| Sheri H. | naers@yahoo.com | Troy was just recently diagnosed with CP. I am recently divorced. We're doing PT and OT. |