Parents of
Children with Cerebral Palsy
(Page: 1, 2, 3, 4)
| Nicci O. | colin91473@hotmail.com | I truly feel that our son is my reason for being born. He is my whole world. He is 2 years old and absolutely adorable. He has had strabismus surgery to correct crossed eyes. We our unaware of the specific cause of his CP. He was born premature. His birthmother used drugs during pregnancy and he tested positive for cocaine at birth. He has been diagnosed with Per ventricular Leukomalacia which means the ventricles in his brain either leaked or ruptured @ or around the time of birth. He had meningitis @ 3 months of age. He wears DAFOs on his legs and walks with a posterior walker. He prefers to sit in the W position every chance he gets & he is very strong willed. He has diplegia which is superimposed to his left arm. He will be getting Botox soon. He currently gets physical therapy, occupational therapy and educational therapy through the Infants and Toddlers Program. If anyone has any comments on Botox that has had experience with it please let me know. |
| Michelle M. | MKllysldly@aol.com | Was married for 9 years ended in divorce, took care of son all on my own. I have 3 other children younger than my son Dane [Age 10 Spastic Quadriplegia]. I have always had to stay home because I have no one to help with care. I've never been financially stable to accommodate my son with proper vehicles so I always have to carry him to van, which gets hard. |
| Merlene B | junieb58@aol.com | I am a working mom with 4 daughters ,Lisa is 12 years old and has [Spastic Quadriplegia] Cerebral Palsy. Lisa has had several surgeries. She talks , very friendly and enjoys people. I am looking forward to speak with mothers and groups that can help me get information on places that help parents with cp kids that work. I am sick of hearing I cant get help because I work a fulltime job ,between taking care of Lisa and working this fulltime job I am having serious back pain. I want to keep Lisa home I need a ramp and a van .she had back surgery 2 years ago and lifting has become very difficult for me. please print my letter. help me keep Lisa home. THANK YOU. |
| Michelle M. | michelle_lm@hotmail.com | My daughter [Age 8 /w Mixed CP] has a laugh that will make you laugh with her!!! Tried Botox Looking at doing surgery. |