| |
Guest/Date |
Comments/Web page URL |
| 12/15 |
Adam
H.
[Web page]
[Email] |
My name is Adam and I have a very mild case of cp. I'm 23 years old and my parents never really taught me about my condition, i live a totally normal life but my legs are affected do to cp, the older I get the harder it is for me to walk some days are worse than others. Can anyone tell me good exercises that could help me on those really bad days and if anyone knows anything to help my conditions from getting worse or to help my condition improve. Thanks, Adam
|
| 10/24 |
Susan
G.
[Web page]
[Email] |
I do long term planning for
individuals with CP. This is an excellent site filled with useful
information. It user friendly and comprehensive. Good job.
|
| 10/03 |
Rebecca
[Web page]
[Email] |
I just want to say thanks with all
my heart for putting so much time and effort into this site!!! Thank you
for being so completely honest about life with CP! Thanks also so much for
providing a place to "VENT"! :) I am doing a college research
project right now on CP. I thought it would be easy since I've lived with
it all my life but I was really starting to hate all the generic medical statements!
This really Helps a Lot Thanks again! :)
|
| 08/18 |
Tammy
E.
[Web page]
[Email] |
I am the mother of a 5 1/2 year old
daughter that has multiple disabilities including CP. I am also VP and
Treasurer of a non-profit organization in KY and IN. Quest for Children
Foundation, Inc. I just want to say that this site is very informative. I
think there should be more sites like this so that all parents and people
are aware of what is available for people with disabilities!
|
| 07/13 |
Chris
H.
[Web page]
[Email] |
This is one of the best sites
I've ever seen! Its always best to read something from someone's own
experience, and this is a great site. I'm studying OT right now so I can
work with CP kids, esp. near drowning. I'd like to hear from other people
who have experience with this. [sic]... Please keep in touch. Your site is
wonderful. God bless you.
|
| 06/19 |
Dan
G.
[Web page]
[Email] |
Hello, I was stopping by to
tell you that the site is finally finished and now I can just add links to
it. I was wondering if you knew of any other good "news"
resources for disabilities. Or special pages for disabled personals.
|
| 6/19 |
Lillian
S.
[Web page]
[Email] |
I love this site! It has given me so
much good information! Keep up the good work! Thank you!
|
| 06/17 |
Jamie
[Web page]
[Email] |
I have a handsome 5 1/2 yr.
old. His name is Timothy Dell and I feel so lucky to have such a wonderful
child. I think it is wonderful you have put this site out there to help
and guide others.
|
| 06/07 |
Matt
[Web page]
[Email] |
Am I thankful for finding this site! I am
in my mid twenties, and suffer from a relatively mild form of CP. It is,
however, impairing enough to cause me significant physical and emotional
discomfort in my life. I am currently seeking treatment for my particular
form of CP. I have tried Baclofen in the past, but discontinued the drug
for a variety of reasons. I am not opposed to further trials of different
medications (and in fact I am currently addressing to my doctor my desire
to start such trials as soon as possible).
I have encountered a general lack of
willingness for most of the neurologists I have visited to really take a
serious stab at treating my CP. I whole heartedly agree with the
statement, found somewhere at this site, that much of the concentration on
CP focuses on children. While I think early treatment is crucial, I wish
more attention was focused on the treatment of adults with CP. Since I
have a relatively mild case of CP, I absolutely refuse to accept the
opinion many doctors have expressed to me--that there is "not
much" they can do to address my specific type of CP. I want to, and
believe I can, receive as much alleviate of my symptoms (primarily
spasticity) as possible.
I also want to thank the person who
addressed, on this site, the issue of aging and CP. I have never seen the
problem of aging and CP addressed before. I have been thinking for a long
time now that I most likely will be experiencing some worsening of my
symptoms the older I get, and it is nice to see someone finally address
this.
|
| 04/14 |
Tammy
T.
[Web page]
[Email] |
I'm glad I found this site. I am 17,
and have spastic quadriplegia. I'm always looking for people to talk to
with C.P.
|
| 04/05 |
Kelli
[Web page]
[Email] |
I am a mother of a 4 yo who has just
been recently diagnosed with a mild form of CP, with spastic diaplagia of
both legs. Right now I am just surfing the web to see what sites there are
for parents of children with CP and places that can help us out. This site
looks really nice.
|
| 04/03 |
Susan
[Web page]
[Email] |
Wonderful site, thank you for the
visit! Sincerely Susan Rapid Recovery Hyperbarics Health Enhancement
Centers
|
| 3/25 |
Julie
[Web page]
[Email] |
I'm 50 with cerebral palsy and about
to loose my job. I work for a insurance company. you have a very
informative web site.
|
| 03/21 |
Jamie
W
[Web page]
[Email] |
I have a 6 1/2 year old son with
cerebral palsy. I was just wanting to write a few words to say nice web
page!!!!!!
|
| 02/24 |
Darlene
[Web page]
[Email] |
My 6 year old son has CP. He uses a
walker and wheelchair. He's a great kid.
|
| 02/19 |
Amir
Seif, PhD
[Web page]
[Email] |
I would like to commend you for your effort to put the cp connection site together.
I work for a company called mobility research - they manufacture, market & educate PTs and parents
about a gait therapy device called Litegait for adults and WalkAble for pediatric patients.
|
| 02/07 |
Mary
[Web page]
[Email] |
I
am a teacher of special needs children. If anyone is non verbal and has a
success story on how they learned to read I would certainly appreciate it!
I have students who use a Liberator and are struggling with learning to
read. |
| 01/28 |
Tammy
[Web page]
[Email] |
Way
to go on a great web site. You have provided me with a lot of information! |
| 01/19 |
Jamie
[Web page]
[Email] |
I
am so glad to be able to find something on CP & the aging! I'm 36
& was born with CP. I'm also glad to know that it wasn't my
imagination that my pains aren't my imagination |
| 01/17 |
Paul
[Web page]
[Email] |
I
have been looking for something like this for a long time. Thank you. |